Year: 2021

5. Mai um 18.00 in der Sendung RONDO in der Rubrik FOKUS Rondo Fokus | suedostschweiz.ch Julia macht es uns leicht mit der Medienarbeit. Sie mag Trampolin springen mit der Moderatorin, Kameras testen und Stativen hinterherjagen! Dankbar um ihr fröhliches Gemüt und ihre spontane, offene Art. Dies hilft uns sehr für das Sanfilippo-Syndrom zu sensibilisieren...

During the news from the italian speaking part of Switzerland on Sunday evening we had the possibility to give an insight into our family and report on the development of HOPE FOR JULIA. Why does Corona make our work difficult and what are the negative but also positive effects of the pandemic on the research...