During the news from the italian speaking part of Switzerland on Sunday evening we had the possibility to give an insight into our family and report on the development of HOPE FOR JULIA. Why does Corona make our work difficult and what are the negative but also positive effects of the pandemic on the research field of rare diseases.

See here the TV report: L’anti-Covid aiuterà anche Julia? – RSI Radiotelevisione svizzera

Thank you Annalisa De Vecchi for your wonderful report about us. Thank you RSI for giving us a voice in this difficult time. We are infinitely grateful to you!